Monday February 7, 2011 the Dews family was interviewed and photographed by Casey Templeton for a audio diary and interent article which bring a spotlight on Sickle Cell and the families story. I will provide an update when the article is released.
Hello Mr.Dew, First off may God bless you and your family. I just read your article in the ny times and I also read some of the posts. What intriguied me is that there are so many different opinions and unfortunatley uneducated comments about SCD. I have family with SCD and i have been actively doing research on SCD and on some of the clinical trials that have been done and that are currently on the way. My ultimate goal,God Willing is to help esthablish a pro active protocol to cure the disease. Because it is and has been cured and there are a couple of drugs that I am aware of on the horizon that would surpress the Sickle Gene itself. I hope this response finds you well. Please feel free to contact me beyonderinc@yahoo.com
Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin* S, an abnormal type of hemoglobin. Sometimes these red blood cells become sickle-shaped (crescent shaped) and have difficulty passing through small blood vessels.
People with sickle cell conditions make a different form of hemoglobin A called hemoglobin S (S stands for sickle). Red blood cells containing mostly hemoglobin S do not live as long as normal red blood cells (normally about 16 days). They also become stiff, distorted in shape and have difficulty passing through the body’s small blood vessels. When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease.
What is Hemoglobin?
Hemoglobin – is the main substance of the red blood cell. It helps red blood cells carry oxygen from the air in our lungs to all parts of the body. Normal red blood cells contain hemoglobin A. Hemoglobin S and hemoglobin C are abnormal types of hemoglobin. Normal red blood cells are soft and round and can squeeze through tiny blood tubes (vessels). Normally, red blood cells live for about 120 days before new ones replace them.
More Information on Sickle Cell
When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.
1 comment:
Hello Mr.Dew,
First off may God bless you and your family. I just read your article in the ny times and I also read some of the posts. What intriguied me is that there are so many different opinions and unfortunatley uneducated comments about SCD. I have family with SCD and i have been actively doing research on SCD and on some of the clinical trials that have been done and that are currently on the way. My ultimate goal,God Willing is to help esthablish a pro active protocol to cure the disease. Because it is and has been cured and there are a couple of drugs that I am aware of on the horizon that would surpress the Sickle Gene itself. I hope this response finds you well. Please feel free to contact me
beyonderinc@yahoo.com
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