Link to Sickle Cell News release on www.marrow.org

Good Morning Friends,

Hope you are all well today. Below is a link with some very exciting news. Thanks to all of you and your continued support and efforts to “Save a Life” now even more people will receive a transplant.It is truly an honor to work with all of you.

Sue

Here is the link to the news release we sent out this week regarding the new sickle cell clinical trial. http://www.marrow.org/NEWS/News_Releases/2008/Sickle_Cell_Study.html

Xerox Corp Community Involvement Cooley’s Anemia Foundation of Monroe County

Cooley’s Anemia Foundation of Monroe County
Cooley's Anemia is a blood disorder. Our group raises funds to pay for medical treatment for those in need but can not afford the services. A percentage of the funds raised also goes to research for a Cure for Cooley’s as well as sickle cell and other blood disorders.
Volunteers are needed to help in fund-raisers and to staff the Bingo program for 1 hour per month or more if you are able.
EMPIRE BINGO HALL AT 380 EMPIRE BOULEVARD

http://www.thalassemia.org/sections.php?sec=3&cooleys_sess=3c3f7dc7aefcf2d3de7e37f2954b7d29
Shirley Cammilleri585-482-5587
Immediate and ongoing need

Stopped by to drop off a logo

Defining the mission statement

These questions are used to define the SC Group to have a good start in our communication

What is your vision (what do you want to be doing) for the SC Group?
- End of 2008 (short term)
- End of 2009 (long term)
- End of 2012 (future)
What are your goals(what do you want o accomplish) for the SC group?

The answers to these questions will form the mission statement that you can articulate and share with others
I will conduct research on SC and so will you. Your goal is to learn new information we can share. I will also do a situational (SWOT) Analysis on SC in general

Identify the people, audience you want to reach.
- For me it would be the government
- Educate family to become ambassador for the cause
- Educate friends to become ambassadors for the cause

Closing out on another Month July

Tiffany has started meetings with the doctors and nursing staff at Strong hospital to kick off the Sickle Cell supoort group. The first meeting went well and the next is in mid August.

Happy Monday everyone. There will be a meeting next Monday July 21 discussing a Sickle Cell support group with participants from the local community and Strong Hospital.

Internet marketing and New Media MKT570

This blog was created because of an assignment for a class I am taking in Internet marketing and New Media for a Masters of Science with a consentration in Marketing from Roberst Wesleyan College in upstate New York. I guess I'm doing well so far. I have 2 kids with Sickle Cell and I figure this may be a topic I could discuss and share.